Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary

As past, current, or future patients, the public should be the health care system's unwavering focus and serve as change agents in its care. Taking this into account, the quality of health care should be judged not only by whether clinical decisions are informed by the best available scientific evidence, but also by whether care is tailored to a patient's individual needs and perspectives. However, too often it is provider preference and convenience, rather than those of the patient, that drive what care is delivered. As part of its Learning Health System series of workshops, the Roundtable on Value & Science-Driven Health Care hosted a workshop to assess the prospects for improving health and lowering costs by advancing patient involvement in the elements of a learning health system.

• Front Matter
• Synopsis and Overview
• 1 The Learning Health System
• 2 Clinical Research, Patient Care, and Learning That Is Real-Time and Continuous
• 3 Clinical Data as a Public Good for Discovery
• 4 Engaging Patients to Improve Science and Value in a Learning Health System
• 5 Health Information Technology as the Engine for Learning
• 6 Patients, Clinical Decisions, and Health Information Management in the Information Age
• 7 Applying Evidence for Patient-Centered Care: Standards and Expectations
• 8 Team-Based Care and the Learning Culture
• 9 Incentives Aligned with Value and Learning
• 10 Common Themes and Opportunities for Action
• Appendixes
• Appendix A: Workshop Agenda
• Appendix B: Biographical Sketches of Workshop Participants
• Appendix C: Workshop Attendee List
• Appendix D: The Learning Health System Series: Workshop Common Themes
• OTHER PUBLICATIONS IN THE LEARNING HEALTH SYSTEM SERIES