Caring for Children Who Have Severe Neurological Impairment
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A01=Julie M. Hauer
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Aspiration Pneumonia
Author_Julie M. Hauer
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Category1=Non-Fiction
Category=MJC
Category=MJW
Category=MKD
Category=VFD
Category=VFDJ
Category=VFXC
Children
Complex Chronic Conditions
COP=United States
Decision Making
Delivery_Delivery within 10-20 working days
End-of-Life Care
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eq_nobargain
eq_non-fiction
eq_parenting
Feeding Intolerance
Language_English
MD
Neuro-Irritability
Neurological Impairment
PA=Available
Pain
Pediatric Palliative Care
Price_€20 to €50
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softlaunch
Product details
- ISBN 9781421409375
- Weight: 703g
- Dimensions: 156 x 235mm
- Publication Date: 26 Sep 2013
- Publisher: Johns Hopkins University Press
- Publication City/Country: US
- Product Form: Paperback
- Language: English
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Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child's best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.
Parents and other caregivers will find this book to be indispensable-as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Julie M. Hauer, M.D., is an assistant professor, medical director of Seven Hills Pediatric Center, and a staff member in General Pediatrics, Complex Care Service, at Boston Children's Hospital Harvard Medical School.
