Entanglements of Rare Diseases in the Baltic Sea Region
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€92.99
A01=Katarzyna E. Krol
A01=Malgorzata Rajtar
Author_Katarzyna E. Krol
Author_Malgorzata Rajtar
caregiving
Category=JBSL
Category=JHB
Category=JHMC
chronicity
Clinical Gene Editing
disability
eq_bestseller
eq_isMigrated=1
eq_isMigrated=2
eq_nobargain
eq_non-fiction
eq_society-politics
genetic diseases
Inherited Metabolic Disease
Product details
- ISBN 9781666942385
- Weight: 490g
- Dimensions: 157 x 238mm
- Publication Date: 16 Oct 2023
- Publisher: Bloomsbury Publishing Plc
- Publication City/Country: US
- Product Form: Hardback
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Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of “rare” or “chronic” disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.
Malgorzata Rajtar is associate professor and head of the Rare Disease Social Research Center at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.
Katarzyna E. Król is PhD student at the Graduate School for Social Research at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.
