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A01=Angus Clarke
A01=Michael Arribas-Ayllon
A01=Srikant Sarangi
analysis
Author_Angus Clarke
Author_Michael Arribas-Ayllon
Author_Srikant Sarangi
bioethics
Category=PSAK
clinical decision making
Clinical Geneticists
common
Common Complex Disorders
complex
confidentiality in healthcare
counselling
discourse
disorders
DMD
Double Guess
DTC
eq_bestseller
eq_isMigrated=1
eq_isMigrated=2
eq_nobargain
eq_non-fiction
eq_science
ethical dilemmas in genetic testing
family genetic counselling
Family Medical History
Genetic Counselling
Genetic Counselling Session
Genetic Professionals
Genetic Responsibility
Genetic Risk
Genetic Technologies
Genetic Testing
Genomic Knowledge
informed consent ethics
knowledge
molecular diagnostics
Online Medicine
Personal Genomics
Personalised Healthcare
Predictive Genetic Testing
Prenatal Diagnosis
QALY Ratio
Reality Tv Show
responsibility
rhetorical
Rhetorical Discourse Analysis
risk
UK Health Professional
UK Practitioner
Unbalanced Rearrangement

Product details

  • ISBN 9780415474436
  • Weight: 570g
  • Dimensions: 156 x 234mm
  • Publication Date: 04 Oct 2011
  • Publisher: Taylor & Francis Ltd
  • Publication City/Country: GB
  • Product Form: Hardback
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Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals.

This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail.

Michael Arribas-Ayllon is Lecturer in Biological and Cognitive Psychology at Cardiff University. His research interests include histories and futures of biological knowledge, the social shaping of genetic testing, the politics of personalised medicine and the discourse ethics of genetic counselling and risk communication. Srikant Sarangi is Professor of Language and Communication and Director of the Health Communication Research Centre at Cardiff University. His research interests are in discourse analysis and applied linguistics, language and identity in public life, and institutional/professional discourse studies. He is author/editor of 12 books, guest-editor of five journal special issues and has published over 200 journal articles and book chapters. Angus Clarke is Professor in Clinical Genetics in Cardiff University. He has interests in Rett syndrome and ectodermal dysplasia, as well as genetic screening, the genetic counselling process and the social and ethical issues raised by advances in human genetics. He also teaches and works as a clinician. He represents the Chief Medical Officer for Wales on the Human Genetics Commission. He has co-authored and edited six books, including Genetics, Society and Clinical Practice (jointly with Professor Peter Harper).

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