How Will They Know If I'm Dead?

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A01=Robert Horn
advanced ALS patient lived experience
ALS Patient
Als Researcher
American Youth Soccer Organization
assistive communication technology
Author_Robert Horn
Big Game
brother
Buffalo
Category=VFD
CHP Officer
chronic disease family impact
Coached Youth Soccer
Contemporary Society
disability adaptation case study
eq_bestseller
eq_health-lifestyle
eq_isMigrated=1
eq_isMigrated=2
eq_nobargain
eq_non-fiction
Fellowship
Gorbachev
Hold
ICU
ICU Nurse
illness
Living
Mikhail Gorbachev
Morning
Mozart
neurodegenerative disease research
page
patient coping strategies
Press
qualitative illness narratives
Robert C. Horn
san
Strong
Superb
syndicate
terminal
tom
Tour
turner
universal
Universal Press Syndicate
Water Heater
West Germany
Young Man

Product details

  • ISBN 9781574440713
  • Weight: 310g
  • Dimensions: 152 x 229mm
  • Publication Date: 25 Nov 1996
  • Publisher: Taylor & Francis Ltd
  • Publication City/Country: GB
  • Product Form: Paperback
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Most books on terminal illness focus on death and dying. This book is about neither. It doesn't deal with statistics or the medical aspects of a crippling disease, and it isn't written by a celebrity about their amazing recovery. This book is about a real person and a true hero. Bob Horn, an authority on the Soviet Union and foreign policy in the Third World, a successful author and teacher, an involved husband and father of three in his mid-forties, awoke one day to find his entire world upside down. Diagnosed in 1988 with ALS (amyotrophic lateral sclerosis), better known as Lou Gerhig's disease, Bob had to deal with the reality that his situation was terminal. How Bob and his family coped and continue to cope or "battle" as Bob prefers to call it with disability and terminal illness is an amazing story that you will find inspiring, heartwarming, humorous, upsetting, and a celebration of the triumph of life. Having already beaten the odds that say he should have died years ago, Bob accomplished the most unbelievable feat he wrote this book. It was discovered that Bob had a pulse in his right foot that could be felt and manipulated. By hooking his foot up to a computer, Bob found he could maneuver the cursor and produce documents. He has written articles for the Los Angeles Times, sermons for his church, correspondence, and most impressive of all this book. Not bad for a man who is completely paralyzed and hasn't moved in six years!

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