Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary

Successful development of clinical data as an engine for knowledge generation has the potential to transform health and health care in America. As part of its Learning Health System Series, the Roundtable on Value & Science-Driven Health Care hosted a workshop to discuss expanding the access to and use of clinical data as a foundation for care improvement.

• Front Matter
• Summary
• 1 Clinical Data as the Basic Staple of the Learning Health System
• 2 U.S. Healthcare Data Today: Current State of Play
• 3 Changing the Terms: Data System Transformation in Progress
• 4 Healthcare Data: Public Good or Private Property?
• 5 Healthcare Data as a Public Good: Privacy and Security
• 6 Creating a Next-Generation Data Utility: Building Blocks and the Action Agenda
• 7 Engaging the Public
• 8 Clinical Data as the Basic Staple of Health Learning: Ideas for Action
• Appendixes
• Appendix A: Workshop Agenda
• Appendix B: Biographical Sketches of Workshop Participants
• Appendix C: Workshop Attendee List
• Appendix D: The IOM Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule
• Other Publications in the Learning Healthcare System Series